Why Not

I am a husband, father, son, brother, uncle and friend. I believe in sharing my talents and experiences by giving back to the community by giving my time to coaching, church and especially to the disability community. I truly believe that all men and women are created equally.

Crisis in Long Term Care

Governor Walker’s proposed 2011 – 2013 biennial budget includes a cap on all of Wisconsin’s major

long term care (LTC) programs for children and adults with disabilities, and for frail elderly people.

This means no new eligible individuals will receive services in Family Care, IRIS, Partnership or the

Children’s Waiver programs unless a current recipient dies or leaves the program. There is no sunset

date for this cap nor any funding set aside to lift the cap, so the cap will be in effect during the entire

biennium and beyond, unless the legislature takes action to lift it.

This is the first budget since the Family Care program started (in 1999) when any governor has

proposed a “hard cap” on new enrollment in Family Care.

This will have the immediate effect of causing LTC wait lists to start growing again, after many years

of reducing the number of people and the length of time waiting for services. It is important to note

that a large proportion of people on the wait lists are receiving no services at all (through the Medicaid

card or any other source) and would be unlikely to receive any services during the upcoming


Specific Detrimental Effects include:

1. Reversal of many years of bipartisan efforts (and progress) to eliminate wait lists, change the

“institutional bias”, and establish a basic right to LTC for elders and people with disabilities.

2. Re-creating new wait lists in 7 “No Wait” counties, several of which ended wait lists several years


3. Putting several thousand people in limbo who are on wait lists in the 50 counties which are

partway through the 3 year countdown to end their wait lists. This amounts to breaking a promise

to people of all ages and families who planned their lives counting on getting help on this


4. Creating tremendous uncertainty in the 15 counties which have not started Family Care or IRIS

regarding when/if they can expect more state/federal funding for LTC services in their counties.

5. Forcing a substantial number of people (elders and adults with disabilities) into inappropriate and

expensive nursing home admissions from July, 2011 into the future.

6. Removing the primary funding source for relocation of elders and people with disabilities from

nursing homes and other institutions.

Note: The combined impact of #5 and #6 will be a reversal of the recent trend reducing

Wisconsin’s utilization of institutions (which was bringing us closer to the national average).

7. Creating a hardship for families and a grim situation for new graduates with disabilities who will

leave high school and now face a wait list of an unspecified number of years with no services to

secure and retain gainful employment or receive community-based supports.

8. Creating a crisis for older families and aging baby-boomers who have middle-aged adult children

with developmental disabilities currently waiting for services or looking to the promise of

community-based long-term care.

Impact of Proposed July, 2011 Cap on Enrollment for

Wisconsin’s Home & Community–based Long Term Care Programs

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